tag:blogger.com,1999:blog-1732751299101032857.post6511629902411336555..comments2023-10-25T04:45:34.892-07:00Comments on Avie's Fight Against CHD: Sometimes there are No WordsAnonymoushttp://www.blogger.com/profile/01973477113360954884noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1732751299101032857.post-27271640788451448032015-12-29T09:15:01.609-08:002015-12-29T09:15:01.609-08:00Praying for you, Avie and Sean! LeePraying for you, Avie and Sean! LeeLee Jacksonhttps://www.blogger.com/profile/14693558129990331370noreply@blogger.comtag:blogger.com,1999:blog-1732751299101032857.post-47201338157787549112015-12-28T11:43:33.499-08:002015-12-28T11:43:33.499-08:00Somer Avie Sean you are all in my prayers. Much lo...Somer Avie Sean you are all in my prayers. Much loveAnonymoushttps://www.blogger.com/profile/06748638825395876453noreply@blogger.comtag:blogger.com,1999:blog-1732751299101032857.post-28438751064002469962015-12-27T19:06:07.855-08:002015-12-27T19:06:07.855-08:00My heart is breaking for you guys as I'm readi...My heart is breaking for you guys as I'm reading this..... I'm glad she's pulled through, and hopefully improving, but I'm heartbroken you've had to experience seeing your child in that condition. Like I told you before she was born, be as loud and pushy as you need to be to get your baby what she needs. I'm sure a few docs at Children's hated me, but we got what we needed. We're still praying for you guys. Let me know if you need anything.Anonymoushttps://www.blogger.com/profile/07535288569074907278noreply@blogger.comtag:blogger.com,1999:blog-1732751299101032857.post-35541570526608717022015-12-27T19:05:50.781-08:002015-12-27T19:05:50.781-08:00My heart is breaking for you guys as I'm readi...My heart is breaking for you guys as I'm reading this..... I'm glad she's pulled through, and hopefully improving, but I'm heartbroken you've had to experience seeing your child in that condition. Like I told you before she was born, be as loud and pushy as you need to be to get your baby what she needs. I'm sure a few docs at Children's hated me, but we got what we needed. We're still praying for you guys. Let me know if you need anything.Anonymoushttps://www.blogger.com/profile/07535288569074907278noreply@blogger.comtag:blogger.com,1999:blog-1732751299101032857.post-84009287494189963752015-12-27T16:17:59.324-08:002015-12-27T16:17:59.324-08:00This comment has been removed by the author.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1732751299101032857.post-51852630797346935862015-12-27T16:12:31.212-08:002015-12-27T16:12:31.212-08:00Somer, I am thinking about you and your family con...Somer, I am thinking about you and your family constantly. You're doing an amazing job and I can't thank you enough for sharing your story as you live it. You are undoubtedly helping so many others who are in similar shoes to your own. <br /><br />Avelyn is a badass and she's going to do GREAT!Anonymoushttps://www.blogger.com/profile/04474390575401626439noreply@blogger.comtag:blogger.com,1999:blog-1732751299101032857.post-36594595990367607732015-12-27T15:55:03.552-08:002015-12-27T15:55:03.552-08:00Somer we are praying for you guys! Love you both ....Somer we are praying for you guys! Love you both ... she is certainly a fighter!Heatherhttps://www.blogger.com/profile/18368737523527830165noreply@blogger.comtag:blogger.com,1999:blog-1732751299101032857.post-42558638805720495732015-12-27T15:52:30.975-08:002015-12-27T15:52:30.975-08:00You need a medical advocate. Be loud and demanding...You need a medical advocate. Be loud and demanding when it comes to what you and Sean feel is best. The doctors are "practicing" medicine but you need a say in her care. Listen to advice but always seek multiple opinions. Praying for Avelyn and you all. Anonymoushttps://www.blogger.com/profile/02779854754000466774noreply@blogger.com