Since then she has had some rough times. She has continued to have bleeding issues, mainly due to extent of the operation (remember it was actually three procedures at once) but also due to still needing heparin to keep her newly reworked vessels patent. She has also had pain and discomfort, her pain medication has had to adjusted frequently. Her chest remains open under a thin transparent antimicrobial film. She is still too swollen with fluid to close it. If her surgeon closes it too soon it will place pressure on her heart, which could lead to permanent damage.
She has been diureasing fairly well though. Hopefully her chest can be closed in a day or two. That'll be a good day. Her lungs are still pretty sick but are making progress. Her peak pressures are not as high, this means the vent doesn't have to use as much force to ventilate. She is requiring a lesser percentage of oxygen than she was a few days ago. Currently she is at 40%, Saturday it was 60%. Room air is 21%. After her chest is closed and she recovers a bit she'll have to get down to room air percentages before extubation.
She is still having some issues with lower lung lobe expansion/collapse. The providers this is due to a combo of atelectasis and fluid pushing in on the lungs from the thoracic cavity. It's getting better though. The respiratory therapists are also still suctioning bloody secretions from her lungs. It's likely from the time she was in surgery and on ecmo. For a couple days her bleeding was just out of control.
She had her last scheduled head ultrasound this morning. It came back unchanged. She still has a small subdural blood collection in her occipital lobe area but it hasn't grown and should reabsorb as time goes on.
That's about all the news I have for now. It's late and sleep doesn't come easy these days. Thank you all for the well wishes, prayers, support and concern. I don't know if we would have survived these last eleven weeks without it.
Avelyn has touched so many people; it's so humbling. I am extremely honored to be her mom. I cannot wait to learn what parenthood outside of these walls entails. I am sure it won't come easy, knowing us it'll be an adventure.
Sean and I are so very blessed. We still have our girl and she is recovering. After the week we've been through-that's really all we care about.
Thanks again for everything.
Much love to each of you.