Thank you for everyone's support and prayers. The out reach for our sweet baby has been awe inspiring. She is still extremely critical but she is making steps toward stabilization. We are so thankful for the existence of the ecmo machine but so wish it wasn't needed. Hopefully Avelyn will continue down this road without anymore detours.
Today her bleeding is continuing to improve. She is also handling her diuretics well, although the team is taking it slow. Her blood pressure is still quite sensitive to fluid changes so it'll be a slow process to get all the fluid off. If all stays on this track we're hoping she can come off ecmo in a few days.
I have had a lot of people ask if there is anything we need or anything they could send to Avelyn. While Sean and I can't think of anything pressing, we could never turn down support for Avie. That being said she really isn't in need of anything material. However we would love to be able to convey to her someday how many people her story has touched and how we all support and believe in her. Therefore if you'd like to send her books with an uplifting messages and/or signed encouragement letters each would be very appreciated. We plan on keeping them and giving them to for her for years to come. With that in mind, there's no single age appropriate timeline, just whatever book inspired you most as a child, adolescent, teenager, or young adult. We'll just give each to her when she's ready for it. Hopefully this can be a positive act that stretches far into her future. She will always have to endure and overcome challenges from this experience and her CHD. We hope to use literature and you all's positive encouragement to build her spirit and strength enough to rise above any limitations she may face.
Also if you all could continue to share her story with those around you to bring awareness to the horrors of CHD and what our babies go through to survive we would greatly appreciate it.
We are receiving mail here in Nashville at