Saturday, March 12, 2016

Praying for Pee

The last couple days have been yet another lesson in patience. Avelyn is in renal failure. We went forward with her extensive surgeries in hopes we could avoid this but alas, here we are. The day of and first day after Avie's surgery she didn't produce any urine at all. Now she is producing a scant bit here and there. Her labs still look awful but aren't getting worse at the rate they were the first two days. We're hoping she has plataued and we'll start to see some improvement soon. 
For now she has been stated on peritoneal dialysis to help her get fluid off and to take some work off her sick kidneys. It's too soon to know if it's really helping of not yet but she is tolerating it alright. Her blood pressure is still a bit labile but not as much as it was. Her chest tube output is picking back up. This is another thing we were praying the surgery would resolve. Again We are hoping to see some improvement with time, but are beginning to get discouraged. She may have to have another procedure to assess the competence of her thoracic duct. We'll just have to wait and see how it all goes.
She has seemed more comfortable since getting haldol the other night. She hasn't needed any additional doses so far and her PRN need has really declined. Today, if she remains comfortable they'll start to wean some of her sedative medications. Hopefully that goes well. It usually doesn't for our sweet girl, but I am hoping her new anatomy and physiology makes all this easier on her.
Sean also managed to find her a weighted blanket (the  blanket with owls below) that seems to be bringing her some comfort. It's a sensory comfort measure. It simulates being held. She really settles out with it on.
It breaks my heart that we have to resort to a weighted blanket to give our baby comfort. I wish more than anything she could be held like she so obviously needs and loves. This is all so frustrating. I miss cradling my baby but I am glad she is finding comfort, no matter the source.
Much love to each of you. Please keep her in your thoughts and prayers. If you feel so inclined, please pray for pee pee.


  1. Come on Sweet Avie...just let it go baby and go pee pee ❤️ Praying for Peace, Comfort & Pee pee ...also praying that she doesn't need another procedure! Poor baby's had enough of those to last a lifetime 😔 So happy Sean found her the blanket ❤️ I meant to shop for one but totally forgot what it was I needed to look for ☹ been so scattered that I have trouble remembering where I parked my car 🙄 Having Avie in such a state keeps my mind on praying for progress in the right direction. Lord God please bless our girl with working kidney function - she needs a blessing Lord, & you're the only one who can give it 🙏🙏

  2. Father, We continue to thank you for your many blessings on our lives. We are asking for peace, comfort, and healing for Avie. We also ask that you give the doctors the knowledge to give the right medications and treatment to Avie. Please give Somer, Sean and her family the rest, peace, and comfort they need as well. In Jesus name I pray. Amen